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BethlemMyopathy.org

INTERNATIONAL

The Journey Begins

DISCLAIMER:  The discussions among one another is not replacement for seeking medical advice Site is intended to education and provide links and information and connections. 

FINANCIAL RESOURCES AND GRANTS

OUTCOMES

 

After making connections people almost want to cry to find others that understand every element of what they go through, from falls, to difficulties, and dealing with many social interactions.  I believe this group allows for interactions, education, and resources that is much needed for this rare disease.

Please check us out for more private Facebook discussions.  It is a private closed group so just sent a message and we will accept.


 https://www.facebook.com/groups/285978178093465/


This page is dedicated to my strong beautiful daughter, Kennedy.


  • The Climb3:56
  • A Mother's Song4:43
  • Good Riddance [Time Of Your Life]2:33
  • Your New Beginning3:35
  • New Soul3:45

 LIFE

 

With a closed Facebook group of over 185 we have an international group from all over.  So if you are looking for something emotional, social, financial or a place to vent or share experiences you found it.


What is Bethlem Myopathy?

OUR BETHLEM FAMILY CONNECTIONS


SUPPORT

                          

With the Facebook group and opportunities here to make connections and exchange email and phone numbers wonderful connections are made.

MUST DO CHECKLIST